Representing the Autism Community

Representing the Autism Community
Allison & Shane Dix with Kevin Rudd, Prime Minister of Australia
WELCOME TO OUR BLOG. We aim to help educate the community about autism and to share with you our personal experiences. We have three beautiful and capable children on the autism spectrum who were all diagnosed in July 2007. We have been through a lot to help them get to where they are today but we still have a long way to go. We will do what we can to support them throughout their lives and to support other families who are also living with autism.

We believe that the initial journey doesn't need to be as difficult as what it is and so we will work hard to provide you with invaluable information and resources to make things that much easier for families and individuals living with autism.We hope that you enjoy our blog and look forward to reading your comments so we can provide you with what you are needing to know, or would like to know.

Happy Rainbows
Autism Global Network
www.autismglobalnetwork.com

Saturday, June 27, 2009

The Cost of Autism....Too Many Families Have More Than One Child With Autism. Watch this CBS News Story on Autism June 21, 2009

This link is a story about a family with three children diagnosed with autism, which is too close to home for us. What really saddens me is that this is becoming way too common. I know that some people think that people who have children with autism must have had something wrong with them to produce children with such defects and so don’t worry about people like us. But let me tell you…. it CAN happen to anyone! The statistics are real, the ratio’s are growing substantially, the pain is real and lonely and the cost is astronomical! I don't even keep track of what we pay for our kids' therapy because it would be too devastating.

All we do is try to mainly focus on the benefits and results they are getting from our therapy of choice and worry about how to pay the bills later. We are lucky, however, because we don't have a mortgage and currently own our house outright. I shudder to think what it would have been like should we have had a mortgage, especially given the fact we are on the pension because Shane suffers chronic and debilitating migraines and I had to leave my career in Human Resource Management to care for the kids and manage their therapy, etc, etc, etc.

Even though this story applies to American health insurance, the situation is not much better here in Australia. Our kids need hours of therapy (40 hours of one-on-one therapy a week they say), which we would exhaust all our insurance and Medicare benefits in just weeks if we paid someone to do this. My family's only choice was that I leave my respectfully paying job to do the therapy myself. All I get for the 40 hours of therapy x 3 (=120 hours) each week is approx $275 AU. On average, it costs $100 AU an hour for a therapist. Therefore, my time is worth $12,000 per week and a staggering and unbelievable $624,000 AU a year. WOW..... IF ONLY!

Heartbreaking to know that families are doing work worth this kind of money only to lose their homes and everything they have. I can't tell you how much this situation saddens me. God Bless all the families who are facing this type of crisis and God Bless all families & individuals living with ASD. Allison xxx

http://www.cbsnews.com/video/watch/?id=5101616n

No comments: